Wednesday, April 22, 2009

Pour me, Poor me

I started typing this for Mel's Lushary but it took on a life of it's own and I decided to move it here instead. Some of this may be familiar, but I'm going into more detail because APPARENTLY it needs to come out. *Warning: this post may be viewed as a pity party. I just need to vent.*

I have fibromyalgia. Not severe, but enough to interrupt my life and make it next to impossible to do things - like stand for more than 5 minutes, lift stuff repeatedly, have energy. It's centered in my hips and lower spine, and there doesn't seem to be much docs can do. I'm on a new med for it, but don't know if I'll stay on it as I've somehow managed to gain 10 pounds in less than a month. I've already got about 60 extra pounds I can't manage to lose - another 10 does not make me happy. It's centered in my hips and lower spine, which makes moving difficult from time to time.

I also have scoliosis - abnormal curvature of the spine. I curve slightly left to right, but I curve severely from front to back. I have a large ass - and most of it is because my spine bends much farther in at the base of my spine, making my tailbone (and thus my "black girl booty") thrust out. I figured out last night that in order for my spine to appear as straight as most people's, I have to bend at a 135* angle. Having a double-curve makes life...well, interesting. The curves are not static - they are always changing in degree. It's painful, but I'm used to it - my back has been like this since I was 10 years old. Or at least, that's when I was dx'd with it. Mom thought I was just experiencing "growing pains", but when it didn't cease she finally took me in. The curves have never been severe enough to warrant a brace, but that may be changing. Unfortunately, I can't exactly afford to go to an orthopedic surgeon type person to get inspected. I don't think it's coincidence that the curves are worsening in time with the fibromyalgia and where IT centers. I think they're feeding off each other and there's natch I can do about it.

Before anyone says "if you exercise, the weight will go away", no - it won't. Go back and reread the previous paragraph. See that whole "not standing, not lifting, no energy" part? Yeah, that includes "no exercising", which requires some energy, the ability to lift something, standing, biking, aerobics. All of which cause pain and lots of it and I'm not talking about your normal "man I worked out yesterday and I'm sore" pain. I'm talking about "I can't get out of bed, I feel like I've been stabbed repeatedly, I can't move" pain that lasts for weeks. One day of trying to do yard work and not listening when my body warned me to stop wiped me for 3 weeks.

Aside from that, I have mild PCOS (just enough to fuck with me, not enough to actually warrant anything in the way of treatment) and am also glucose intolerant (since they usually go hand in hand). The doc I finally get to go back to now that I've graduated college and don't have to use their health center anymore is a wonderful, wonderful man who trusts me when I say "would you please up my dosage of Met because we both know that 500 doesn't do jack shit?" He upped me to 1000 at the same time he put me on the new med for the fibro (also at my request). I didn't have the s/e's that I expected, although I am finally hungry for the first time in eons. I'd say that's why I've gained weight, but everyone keeps telling me I need to eat more...and now that I am, I've managed to prove my theory that eating makes me fat.

I haven't worked since October, when I quit my job (that was dying) to focus on school and mom. I graduated in December and started looking for a job on January 2nd. I still don't have one. I had work through a "temp" company for 3 days, and the guy was supposed to have me come back, but he never has. That was in March. I had an interview about 2 weeks ago for a company that works with mentally ill people, but that didn't pan out either. The job market sucks monkey balls right now and it's seriously frustrating. I got this damn degree that all the companies wanted and now I can't do shit with it. I'm qualified to work in any office, if they'd just hire me goddammit. I've always been qualified - somehow I think 14 years in an office qualifies me - but couldn't get the "good" jobs because I didn't have a degree. Finances are tight - very tight. If anything changes (the SIL & BIL move out, my student loans come due) we're royally fucked. If things stay exactly as they are until I find a job, we'll make it. We've made it for the last 7 months...we can keep making it. That's not likely to happen, though. Loans are due in about 2 months, and the SIL/BIL were planning on moving out in August. One royal fuckage, coming right up!

When I envision my future right now, all I can see is myself becoming my MIL. Sitting around all day on the computer, watching TV, whining because I can't do anything without hurting myself, and generally being worthless to the household. I don't want to be like that. If I sit around on the computer all day, I want it to be by my choice...not because I don't have anything else to do. I never thought I'd get tired of spending 14 hours a day playing WoW, but I'm at that point. I miss being face-to-face social with people, laughing and joking and flirting. I feel broken - infertility aside. I have a brain that's always in a fog and a body that can't do what I want it to. At least I have a husband who loves me, and friends that support me.

3 comments:

Jess said...

I'm sorry. Crap on top of crap is what you have, and there's nothing fair about it.

Lollipop Goldstein said...

No good words, so just leaving a hug.

Erin said...

Totally sucks, and that makes it totally okay to have a pity party now and then. My mother in law also suffers from fibromyalgia. She is severely obese which has only exacerbated the problem but she has found quite a bit of relief from going to a warm therapy pool. I don't know if you have one in your area but I know she feels so much better when she's been at the pool.